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Rep. Jason Altmire

Mr. Speaker, I rise today to bring attention to a cause of great importance, the fight against Pulmonary fibrosis. Pulmonary fibrosis is a disorder of the lungs that, over time, deprives its victims of their ability to breathe normally. An estimated 200,000 Americans currently suffer from Pulmonary fibrosis, and 48,000 additional cases are diagnosed each year. Sadly, the disease claims 40,000 lives every year, yet there is no known cause, and even worse, no cure. Despite the prevalence of Pulmonary fibrosis, it remains virtually unknown to the public.

That is why I was proud to cosponsor the Pulmonary Fibrosis Research Enhancement Act in the past, and why I believe it is important to do so again in the 112th Congress. This bill would require the creation of a National Pulmonary Fibrosis Registry to collect data, expand research for prevention, and generate much needed awareness for the individuals who suffer from Pulmonary fibrosis, and the loved ones who care for them. It would also create a national advisory board that would report to Congress, convene a national summit, and foster greater coordination among federal agencies to better facilitate information in an effort to better understand the disease.

The Coalition for Pulmonary Fibrosis is a group of dedicated individuals who together are working to raise awareness in the hopes that one day we can discover the cause of Pulmonary Fibrosis, as well as a treatment and cure. In August 2011, the Coalition held an inaugural walk/run to raise money for Pulmonary Fibrosis in Pittsburgh, Pennsylvania. The event was a great success. Over 270 people participated, and they raised over $28,000.

The Pulmonary Fibrosis Research Enhancement Act is a crucial step in the fight towards increasing public awareness and understanding of the disease. I urge my colleagues to join me in supporting this worthy cause, and this important piece of legislation.